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I spent over a decade ‘off diet’ and had to completely relearn how to live with PKU. Now well into that recovery, I know that creative cooking and community have ushered my success. I hope this blog helps others find the inspiration, resilience, and support to thrive with our rare disorder.
RECIPES
Recipes
STORIES
Blog
The ‘Preconception Diet’ (or Pre-Con) is the first step toward a healthy PKU pregnancy. I was clueless about how difficult it would be and how much it would change my life. But if i can do it, so can you. One tip? Go in with eyes wide open...
Unfortunately, i have too much experience in this area. But the real answer is scary and difficult to explain: I don’t know. Mental fog, memory issues, and anxiety are common, but it’s the unanswered questions that are hardest to swallow...
PKU was easy as a kid, but social pressures in high school and college got the best of me. I was ‘off diet’ for over a decade and getting back on track was extremely difficult. Protein was my addiction, and even now l don’t claim to be an expert. I’m “in recovery” and always learning…
Let's swap stories (and recipes)
Please reach out with any questions or simply to say hi. I’d love your feedback and or a chance to collaborate with others in the PKU community. Thanks for reading!
Let's connect!
Sharing my PKU story on Instagram changed my life. I’ve found real friendships, lessons from others in the community, and a little support from every corner of the world.
Follow me! @jendellarosa
When I attended my first PKU conference, I was hit hard by regret and emotion. I asked myself hard questions: why did I spend so long off diet? And more importantly, was there anything that might have helped me stay on track? Here’s what I came up with…